London Neonatal Parent Advisory Group

What is the PAG?

The London Neonatal Parent Advisory Group (PAG) is made up of parents, carers and family members that have experienced neonatal care in London. The collaborative aim of the group is to come together along with neonatal healthcare teams, and be the expert through lived experience. Working together advising on potential improvements and co-producing developments for our region’s neonatal care, ensuring the best possible outcomes and experiences for babies and families.

The PAG group sits within an organisation called the London Neonatal Operational Delivery Network (sometimes known as the London Neonatal Network or London Neonatal ODN). The ODN is a formal structure in which our hospital Trusts, commissioners and families work together to improve babies’ outcomes and family’s experiences on their journeys through neonatal care and beyond. More information about the Network can be found via this link About Us.

Who organises the PAG?

The group is facilitated by the PAG Chair, Jade, who has lived experience of neonatal care as a parent. The PAG Chair and PAG group are supported by the Care Coordinator team and the Psychology Lead, as well as the wider ODN team.

How can I help?

Your voice is vital in leading change and we cannot do it without you. To achieve this, the London ODN are inviting neonatal family members to join our PAG. We welcome voices from all backgrounds, cultures, and lived experiences, supporting our vision of capturing and hearing the voices of London’s wide and diverse neonatal population.

Parents Feedback

You can also share your experiences of your neonatal journey with us by completing this short feedback form. You can share your experiences at any time you feel ready.

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We’d love to have your photos and video
of your time on the neonatal unit

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Your Stories of your experiences on the neonatal unit