Listening and hearing the neonatal voice

Together your voices can work to make neonatal care in London the best for babies and families.

London Neonatal Parent Advisory Group

What is the PAG?

The London Neonatal Parent Advisory Group (PAG) is made up of parents, carers and family members that have experienced neonatal care in London. The collaborative aim of the group is to come together along with neonatal healthcare teams, and be the expert through lived experience. Working together advising on potential improvements and co-producing developments for our region’s neonatal care, ensuring the best possible outcomes and experiences for babies and families.

The PAG group sits within an organisation called the London Neonatal Operating Delivery Network (sometimes known as the London Neonatal Network or London Neonatal ODN). The ODN is a formal structure in which our hospital Trusts, commissioners and families work together to improve babies’ outcomes and family’s experiences on their journeys through neonatal care and beyond. More information about the Network can be found via this link About Us.

Who organises the PAG?

The group is facilitated by the PAG Chair, Jade, who has lived experience of neonatal care as a parent. The PAG Chair and PAG group are supported by the Care Coordinator team and the Psychology Lead, as well as the wider ODN team.

How can I help?

Your voice is vital in leading change and we cannot do it without you. To achieve this, the London ODN are inviting neonatal family members to join our PAG. We welcome voices from all backgrounds, cultures, and lived experiences, supporting our vision of capturing and hearing the voices of London’s wide and diverse neonatal population.

Interested in joining?

If you are interested in joining the London PAG, please complete the web form here and one of our team will be in touch with you to have a short chat.

We recommend a minimum of at least 1 year has passed from your discharge from neonatal care, for families wishing to join the PAG. We ask this because we know that a neonatal admission can have a huge impact on you and your baby and we want you to have time to recover and make sense of it first. We are really open to conversations with you about when you are ready to be involved.

Please note;
The London Neonatal ODN and Parent Advisory group is not in a position to comment directly on any clinical care, queries or complaints you may have. We recommend in the first instance approaching your neonatal unit healthcare team, or your hospital PALS team, (Patient Advise Liaison Service).

To join the London Neonatal Parent Advisory Group please complete this form

Parents Feedback

You can also share your experiences of your neonatal journey with us by completing this short feedback form. You can share your experiences at any time you feel ready.

Neonatal parents and families as experts by lived experience working together

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We’d love to have your photos and video
of your time on the neonatal unit

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Your Stories of your experiences on the neonatal unit

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